Posts Tagged ‘future’

17/20 December Blog Challenge: My Dream Job.

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If I could be anything… What would I be?

I have spent so much time thinking about this topic. The big question in life… What do you want to be when you grow up? I keep asking myself this… But the fact is, I am grown up and I still might not have any more of an idea of what I would like to do with my life than I did 12 years ago when I graduated high school.

I wonder sometimes if I am wasting my life… I wonder sometimes how others figured out their dreams. I wonder sometimes why I cannot figure out what it is that I want.

There are so many things that seem so appealing. There are so many things out there that I feel I would never be able to do.

When I was a kid, I wanted nothing more than to be an Astronaut. To travel into space and fulfill my fantasies of being in some other time and place. I watched a lot of Star Trek and other sci-fi growing up. Actually I still do 😉 But, the requirements for such a career are much too involved for me.

In my adult life I have dreamed of having a bakery. I LOVE baking. I could do it all day everyday. I don’t know if I have the skills… but I would have a great time practicing till I was amazing. This dream I feel is my guilty dream. I feel like it might be inappropriate for me to follow through on this dream because of my daughter.  Some of you probably know, but for those of you that dont know… My daughter has a rare condition called Prader Willi Syndrome. This is a genetic disorder that effects her metabolism and her ability to feel full from eating. My daughter will always be on a heavily calorie restricted diet, she will never be able to really indulge in sweets and treats… her diet must, for her health and safety be nutritious and healthy. How could I, in good conscience, have a bakery that sells essentially all the things I wouldn’t want my child to consume. I feel that would make me a hypocrite.

So where does that leave me? Still wondering what my role is in the world … where do I fit in?

At the moment, I am happy being a stay at home mom… it is indeed a full-time job!

Perhaps in the future I can revisit the bakery idea, or I have even recently started thinking about the fitness avenue of careers.

My dream job would have to be something that allows me to still be a good mom. I wouldn’t want a career that took me too much away from my family life… With my daughters needs, It’s very important in our family for her to be our main concern. Who knows what the future will bring… I guess I just have to wait and see and keep on dreaming.

What is your dream job? Are you doing it?

Mira

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13/20 December Blog Challenge: My Fears.

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My fears…

I have many fears. Throughout my life I have been afraid of many things, this or that, it doesn’t really matter anymore.  I have learned that when you become a mother/parent, that those fears you had all start to seem pretty trivial.  Now my fears all seem to revolve around my daughter.

If you are a follower of my blog, you probably already know about my daughter and her genetic disorder. For those of you that are new, My daughter has a rare genetic condition called Prader Willi Syndrome. One of the most dangerous symptoms of her condition centers around eating. Her body doesn’t metabolize food like her typical peers, in fact her body can only handle about 60% of the calories that her peers can. With the slow metabolism there is ( and thankfully this hasn’t kicked in yet for our daughter) also an insatiable hunger that is a main trademark of PWS.  Imagine never feeling full, no matter how much you eat.

The hunger of PWS is the root of many of my fears. I fear that my daughter will never feel full after eating. I fear that this hunger will control her life and she will not be happy. I fear that a remedy will never be found to help her. I fear that the hunger will drive her to be someone that she is not. And I fear, more than anything, that someday… for just one moment my attention won’t be on her, and she will gain unsupervised access to food and in that time she will eat herself to death.

These are horrible things to be afraid of. These are things that no one should have to fear. Food, it is such a complicated topic with PWS…. We need food to live… it’s what sustains us.. gives us life… but for my daughter is the one thing that is also so very dangerous.

I also fear that people will not understand my daughter and the seriousness of her condition. This is why I started my other blog ( Fight the HUNGER) which also has a facebook page. It is my mission to spread awareness for PWS, help fund-raise for research that will hopefully help with the symptoms of PWS and to do anything I can to help my daughter live the best possible life she can while managing her syndrome.

76_French-Emelyn-00052I fear that I will never be able to give her the amazing life she deserves… But I will never stop trying.

whoa these blog posts just got real…

Mira