Posts Tagged ‘eating out’

13/20 December Blog Challenge: My Fears.

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My fears…

I have many fears. Throughout my life I have been afraid of many things, this or that, it doesn’t really matter anymore.  I have learned that when you become a mother/parent, that those fears you had all start to seem pretty trivial.  Now my fears all seem to revolve around my daughter.

If you are a follower of my blog, you probably already know about my daughter and her genetic disorder. For those of you that are new, My daughter has a rare genetic condition called Prader Willi Syndrome. One of the most dangerous symptoms of her condition centers around eating. Her body doesn’t metabolize food like her typical peers, in fact her body can only handle about 60% of the calories that her peers can. With the slow metabolism there is ( and thankfully this hasn’t kicked in yet for our daughter) also an insatiable hunger that is a main trademark of PWS.  Imagine never feeling full, no matter how much you eat.

The hunger of PWS is the root of many of my fears. I fear that my daughter will never feel full after eating. I fear that this hunger will control her life and she will not be happy. I fear that a remedy will never be found to help her. I fear that the hunger will drive her to be someone that she is not. And I fear, more than anything, that someday… for just one moment my attention won’t be on her, and she will gain unsupervised access to food and in that time she will eat herself to death.

These are horrible things to be afraid of. These are things that no one should have to fear. Food, it is such a complicated topic with PWS…. We need food to live… it’s what sustains us.. gives us life… but for my daughter is the one thing that is also so very dangerous.

I also fear that people will not understand my daughter and the seriousness of her condition. This is why I started my other blog ( Fight the HUNGER) which also has a facebook page. It is my mission to spread awareness for PWS, help fund-raise for research that will hopefully help with the symptoms of PWS and to do anything I can to help my daughter live the best possible life she can while managing her syndrome.

76_French-Emelyn-00052I fear that I will never be able to give her the amazing life she deserves… But I will never stop trying.

whoa these blog posts just got real…

Mira

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Eating out and Paleo.

When following a paleo diet, I have been noticing that it is so much easier when I cook and prepare my meals at home.  Probably this is due to the fact that I am pretty aware of exactly what is going into my meals, and therefore into my body. 

When traveling, its so hard to know whats in their foods. Soy and wheat are in almost everything. Even a chicken breast for a salad often contains soy…why?!

Today, driving back from P.E.I. we were hungry and had to feed the baby, so we stopped to eat. the only decent place we could find was East Side Marios.  Let me tell you, Its hard to find something paleo in a pasta kitchen style restaurant. First i asked for the Gluten Free Menu. And then I Googled their allergen menu. With the paleo “restrictions” It seemed like we werent going to be able to find anything that full fit. Luckily, I talked to the waitress, who then talked to the kitchen, who then proceeded to talk to the manager and finally went back and talked to the kitchen. What did we talk about? The above mentioned chicken breast and the possibility of getting it without whatever soy marinade or seasoning they use… so I could have it on a salad. Im pleased that they were able to comply…

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I think a lot of places are pretty willing to comply with dietary restrictions as long as you talk to them about it. Probably not somewhere like KFC or Taco Bell. But a sit down place, that potentially can serve you REAL FOOD.

Its good to know that I wont starve to death or always have to compromise when I am eating out.